Day 2

29/01/2013 21:41

It felt at the start of today like one step forward two back. Sadie had had 3 seizures by 1pm and we needed to give her Adavan. Her ketone levels were checked in the am and there were none present yet. Sadie has been a major trooper with the diet. It is a small amount of food, but the cream, butter and oil is what most of her calories are coming from. It has been a bit of a challenge getting her to eat, so Blair used a medicine droper and gave her the cream/oil mixture that way! It totally did the trick were Sadie is used to getting her meds that way anyway. I really have found good success by mixing the fatty foods into the apple sauce or cream. A little container of margerine was part of her supper so I melted and mixed in with her apple sauce and she was none the wiser! It is really important that people around her are postive and not grossed out while she is eating because we don't want that to negatively impact how Sadie is feeling about what she is eating. The dietition spent some time with Blair and I and my mom this am doing some training. There is a fair bit of choice but everything is so presise with the calculation. She is very flexiable with getting us receipes for items that Sadie will like, and we will be in constant contact with her. So the end of the day got better, Sadie got a bit of sleep and we rechecked Ketones and they are starting to be present!! So the process has begun, we are on our way to Ketosis...