Day 4

Today was a bit overwhelming, but we are home at last! We met with Sadie's dietitian and got receipes to take home, and a lot of documentation, on things such as medications on the diet, constipation, trouble shooting tips for things such as falling out of Ketosis or being too far into Ketosis. The part that was a bit overwhelming is the planning piece behind the diet. The diet comes with supplements, such as a specific type of multi vitamin, d drops, calcuim, and she will be on PEG for her bowels as well.  I made a sheet up, see picture, that we are going to use to track her meals, meds, and liquid in take daily. It is a good check list too to make sure we haven't forgotten anything! We set up a binder we will keep with her receipes, those daily sheets and all her documentation in it so when we go for check ups we can have all her information together. I went through the reciepes before we left the hospital and made a list of some key things we picked up, but we have decided we will be planning her meals a week out. It was tricky getting Sadie to finish the meals and although the hospital was great at preparing them, its not the same as being home and making key things she likes and 'Ketogising' them up! Blair and I don't see us having to make "seperate" meals, but tweaking it for her. For example chicken breasts is a reciepe we have so we could have chicken and then weigh her portion and cook with the butter and or cream and oil. Sadie really likes an apple sauce texture especially where she has not been well, its comfort food for her so if the portions of veggie and protein are an issue, we may try to puree and see if she will eat that way, it is going to be some trial and error but the key thing is to get her to eat her full meals. The thing is that the amounts of protein and fruit are so small we want her to get all those nutrients and they are calculated in the recipes. She left hopstial at a 3:1 ratio, 3 fat to 1 carb/protein combined...small portions. It has been a long week but rewarding, it is hard juggling the hospital and also a 6 month old little sister, but we did it, and we had some great support people, thanks Mom and Ardy, you guys rock! Now we see what happens, we will be checking her pee daily for the first month for ketones and she will be followed closely with bloodwork, dietition visit, and neuro visit after the first month. Tommorow we are going to make our first Keto breakfast, eggs and fruit, with oil, cream and butter...